Mayor of Izmir Metropolitan Municipality Tunç Soyerhas called Izmir Solidarity, which has been revived in every difficult day from pandemic to disaster, this time for children with SMA. Announcing that they have started a campaign that brings together children with SMA who are waiting for treatment and those who want to help them on “bizizmir.com”, President Soyer said, “Let our children with SMA come alive with the power of solidarity and love.”
Mayor of Izmir Metropolitan Municipality Tunç SoyerIzmir Solidarity, which was started by . While Turkey does not meet the "gene therapy" drug on the grounds that its effectiveness has not been fully proven in clinical trials, families organize campaigns to receive this treatment. In order to support SMA patients with very high gene therapy costs, the “Be hope, be life” page was opened on the website “bizizmir.com”. Those who want to participate in the campaign from home and abroad can send money directly to the IBAN accounts of children with SMA, as well as support them by sending an SMS. For donations from all operators, 1 SMS is 20 lira and 5 euro.
“Let this practice that hurts consciences end”
Mayor of Izmir Metropolitan Municipality Tunç Soyerstarted its SMA solidarity by announcing its social media accounts. Explaining the details of the project, President Soyer gave the following statements in the video message he addressed to the citizens: “You know, we have hundreds of children in the grip of SMA who are waiting for healing… The cost of gene therapy required for their recovery is very high and unfortunately is not covered by the SSI. Of course, our main demand is for this practice that hurts conscience to end. When the time comes, it will be. But now our duty is to support these children together.”
“Please… Let's join hands now”
Stating that they brought together families who opened an aid campaign in Izmir with the permission of the official institutions, and those who want to support, on the We Izmir application, Mayor Soyer continued his words as follows: you can reach easily. In the coming days, I will announce our projects to further expand the solidarity. Come on… Please… Let's join hands now… Let's bring life to our SMA children with the power of solidarity and love.”
How to apply to “Be hope, be life” page?
The solidarity project, which brings together those who want to support SMA patients in need, is expected to grow like an avalanche. SMA patients from Izmir, who have received campaign permission from the Governor's Office, need to apply to the Izmir Metropolitan Municipality Social Projects Department, Family and Child Services Branch, by calling the line (0232) 293 96 81 during working hours in order to be on the “Be hope, be life” page. .
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